2.2.0 - ci-build
VoiceaBiomarkerforAI - Local Development build (v2.2.0) built by the FHIR (HL7® FHIR® Standard) Build Tools. See the Directory of published versions
| Official URL: https://kind-lab.github.io/vbai-fhir/Questionnaire-dneuroamyotrophiclateralsclerosisalsschema | Version: 2.2.0 | |||
| Active as of 2024-05-29 | Computable Name: | |||
| LinkID | Text | Cardinality | Type | Description & Constraints |
|---|---|---|---|---|
![]() | Questionnaire | https://kind-lab.github.io/vbai-fhir/Questionnaire-dneuroamyotrophiclateralsclerosisalsschema#2.2.0 | ||
![]() ![]() | 1. Gold Standard Diagnosis Does the patient meet the diagnostic criteria for Amyotrophic Lateral Sclerosis (ALS) based on:: (1) Progressive motor impairment documented by history or repeated clinical assessment, preceded by normal motor function; | 0..1 | choice | Options: 3 options |
![]() ![]() | (2) presence of UMN and LMN signs in at least 1 body region (with UMN and LMN dysfunction noted in the same body region if only one body region is involved) or LMN dysfunction in at least 2 body regions; | 0..1 | choice | Options: 3 options |
![]() ![]() | (3) investigations excluding other disease processes. | 0..1 | choice | Options: 3 options |
![]() ![]() | Does the patient meet the diagnostic criteria for Amyotrophic Lateral Sclerosis (ALS) based on the criteria above? | 0..1 | string | |
![]() ![]() | 2. Type of ALS: Specify the type of ALS in the patient: | 0..1 | choice | Options: 4 options |
![]() ![]() | If you selected "Familial ALS", please specify the genetic mutation if known: | 0..1 | string | Enable When: diagnosis_als_disease_subtype = 'familialAls' |
![]() ![]() | 3. Etiology: What is the suspected or known etiology of ALS in the patient? | 0..1 | string | |
![]() ![]() | Genetic Factors | 0..1 | string | Enable When: diagnosis_als_etiology = 1 |
![]() ![]() | If you selected "Other genetic factors", please specify: | 0..1 | string | Enable When: diagnosis_als_etiology_genetic_factors = 1 |
![]() ![]() | If you selected "Environmental factors", please specify: | 0..1 | string | Enable When: diagnosis_als_etiology = 1 |
![]() ![]() | 4. Clinical Presentation: Describe the clinical features and symptoms of ALS in the patient: | 0..1 | string | |
![]() ![]() | 5. Disease Progression: Please provide information on the current stage and progression of ALS: | 0..1 | choice | Options: 3 options |
![]() ![]() | 6. Neurological Assessment Please provide results from relevant neurological assessments:: Revised ALS Functional Rating Scale (ALSFRS-R) score: | 0..1 | string | |
![]() ![]() | Forced Vital Capacity (FVC) percentage (if measured): | 0..1 | string | |
![]() ![]() | Other neurological assessment (please specify): | 0..1 | string | |
![]() ![]() | 7. Imaging and Diagnostic Tests: Electromyography (EMG) and Nerve Conduction Studies (NCS): | 0..1 | string | |
![]() ![]() | Magnetic Resonance Imaging (MRI) of the brain and spinal cord: | 0..1 | string | |
![]() ![]() | Lumbar Puncture (if performed, specify findings): | 0..1 | string | |
![]() ![]() | Genetic testing (if applicable, specify results): | 0..1 | string | |
![]() ![]() | Other diagnostic tests (please specify): | 0..1 | string | |
![]() ![]() | 8. Treatment and Management: Has the patient undergone any treatment or interventions for ALS? | 0..1 | choice | Options: 2 options |
![]() ![]() | Yes | 0..1 | string | Enable When: diagnosis_als_treatment_and_management = 'yes' |
![]() ![]() | Medications (if applicable): | 0..1 | string | Enable When: |
![]() ![]() | If you selected "Other", please specify: | 0..1 | string | Enable When: |
![]() ![]() | Supportive Care: | 0..1 | string | Enable When: |
![]() ![]() | If you selected "Other", please specify: | 0..1 | string | Enable When: |
Options Sets
Answer options for diagnosis_als_gsd_category_1
Answer options for diagnosis_als_gsd_category_2
Answer options for diagnosis_als_gsd_category_3
Answer options for diagnosis_als_disease_subtype
Answer options for diagnosis_als_dp
Answer options for diagnosis_als_treatment_and_management