{ "resourceType" : "Questionnaire", "id" : "dneuroparkinsonsdiseaseschema", "text" : { "status" : "generated", "div" : "
Structure\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n\r\n
LinkIDTextCardinalityTypeDescription & Constraints\"doco\"
\".\"\".\" Questionnairehttps://kind-lab.github.io/vbai-fhir/Questionnaire-dneuroparkinsonsdiseaseschema#2.2.0
\".\"\".\"\".\" diagnosis_parkinsons_gsd_category_11. Gold Standard Diagnosis\nDoes the patient meet the diagnostic criteria for Parkinson's Disease (Parkinsonism) based on presence of:: Category 1 - Parkinsonism0..1string
\".\"\".\"\".\" diagnosis_parkinsons_gsd_category_1_calculationCategory 1 Criteria Met0..1string
\".\"\".\"\".\" diagnosis_parkinsons_gsd_category_2Category 2 - Exclusion criteria0..1string
\".\"\".\"\".\" diagnosis_parkinsons_gsd_category_2_calculationCategory 2 Criteria Met0..1string
\".\"\".\"\".\" diagnosis_parkinsons_gsd_category_3Category 3 - Supportive criteria0..1string
\".\"\".\"\".\" diagnosis_parkinsons_gsd_category_3_calculationCategory 3 Criteria Met0..1string
\".\"\".\"\".\" diagnosis_parkinsons_gsd_calculationDoes the patient meet the diagnostic criteria for Parkinson's Disease (Parkinsonism) based on the criteria above?0..1string
\".\"\".\"\".\" diagnosis_parkinsons_disease_subtype2. Disease Type: Specify the subtype of Parkinson's Disease in the patient:0..1choiceOptions: 7 options
\".\"\".\"\".\" diagnosis_parkinsons_disease_subtype_otherIf you selected "Other Parkinsonism or Atypical Parkinsonism", please specify:0..1stringEnable When: diagnosis_parkinsons_disease_subtype = 'other'
\".\"\".\"\".\" diagnosis_parkinsons_etiology3. Etiology: What is the suspected or known etiology of Parkinson's disease in the patient?0..1choiceOptions: 3 options
\".\"\".\"\".\" diagnosis_parkinsons_etiology_fpdIf you selected "Familial Parkinson's Disease", please specify the genetic mutation if known:0..1stringEnable When: diagnosis_parkinsons_etiology = 'familialParkinsonsDisease'
\".\"\".\"\".\" diagnosis_parkinsons_etiology_efIf you selected "Environmental Factors", please specify if known:0..1stringEnable When: diagnosis_parkinsons_etiology = 'environmentalFactors'
\".\"\".\"\".\" diagnosis_parkinsons_ds4. Disease Severity: What is the current stage/severity of Parkinson's disease in the patient?\n•\tHoehn and Yahr Scale:0..1choiceOptions: 5 options
\".\"\".\"\".\" diagnosis_parkinsons_ma5. Motor Assessment: Please provide scores or results from validated cognitive assessment tools:0..1string
\".\"\".\"\".\" diagnosis_parkinsons_ma_uprdsUnified Parkinson's Disease Rating Scale (UPDRS)0..1choiceEnable When: diagnosis_parkinsons_ma = 1
Options: 4 options
\".\"\".\"\".\" diagnosis_parkinsons_ma_updrs_part_i_scorePart I (Intellectual function, mood, behavior) score:0..1stringEnable When: diagnosis_parkinsons_ma_uprds = 'partI'
\".\"\".\"\".\" diagnosis_parkinsons_ma_updrs_part_ii_scorePart II (Activities of daily living) score:0..1stringEnable When: diagnosis_parkinsons_ma_uprds = 'partII'
\".\"\".\"\".\" diagnosis_parkinsons_ma_updrs_part_iii_scorePart III (Motor Examination) score:0..1stringEnable When: diagnosis_parkinsons_ma_uprds = 'partIII'
\".\"\".\"\".\" diagnosis_parkinsons_ma_updrs_part_iv_scorePart IV (Motor complications) score:0..1stringEnable When: diagnosis_parkinsons_ma_uprds = 'partIV'
\".\"\".\"\".\" diagnosis_parkinsons_ma_otherIf you selected "Other motor assessment tool", please specify:0..1stringEnable When: diagnosis_parkinsons_ma = 1
\".\"\".\"\".\" diagnosis_parkinsons_non_motor_symptoms6. Non-Motor Symptoms: Are there significant non-motor symptoms associated with Parkinson's disease in the patient?0..1choiceOptions: 2 options
\".\"\".\"\".\" diagnosis_parkinsons_non_motor_symptoms_yesIf you selected "Yes", please specify:0..1stringEnable When: diagnosis_parkinsons_non_motor_symptoms = 'yes'
\".\"\".\"\".\" diagnosis_parkinsons_treatment_obtained7. Treatment Obtained: Has the patient undergone any treatment for Parkinson's disease?0..1choiceOptions: 2 options
\".\"\".\"\".\" diagnosis_parkinsons_treatment_obtained_yesYes0..1stringEnable When: diagnosis_parkinsons_treatment_obtained = 'yes'
\".\"\".\"\".\" diagnosis_parkinsons_treatment_obtained_yes_medicationsMedications:0..1stringEnable When:
\".\"\".\"\".\" diagnosis_parkinsons_treatment_obtained_yes_medications_otherIf you selected "Other", please specify:0..1stringEnable When:
\".\"\".\"\".\" diagnosis_parkinsons_treatment_obtained_yes_npiNon-pharmacological interventions:0..1stringEnable When:
\".\"\".\"\".\" diagnosis_parkinsons_treatment_obtained_yes_npi_otherIf you selected "Other", please specify:0..1stringEnable When:

\"doco\" Documentation for this format

Options Sets

Answer options for diagnosis_parkinsons_disease_subtype

Answer options for diagnosis_parkinsons_etiology

Answer options for diagnosis_parkinsons_ds

Answer options for diagnosis_parkinsons_ma_uprds

Answer options for diagnosis_parkinsons_non_motor_symptoms

Answer options for diagnosis_parkinsons_treatment_obtained

" }, "url" : "https://kind-lab.github.io/vbai-fhir/Questionnaire-dneuroparkinsonsdiseaseschema", "version" : "2.2.0", "title" : "d_neuro_parkinsons_disease_schema", "status" : "active", "date" : "2024-05-29T18:29:19Z", "publisher" : "KinD Lab", "contact" : [{ "name" : "KinD Lab", "telecom" : [{ "system" : "url", "value" : "http://fhir.kindlab.sickkids.ca" }] }], "item" : [{ "linkId" : "diagnosis_parkinsons_gsd_category_1", "text" : "1. Gold Standard Diagnosis\nDoes the patient meet the diagnostic criteria for Parkinson's Disease (Parkinsonism) based on presence of:: Category 1 - Parkinsonism", "type" : "string" }, { "linkId" : "diagnosis_parkinsons_gsd_category_1_calculation", "text" : "Category 1 Criteria Met", "type" : "string" }, { "linkId" : "diagnosis_parkinsons_gsd_category_2", "text" : "Category 2 - Exclusion criteria", "type" : "string" }, { "linkId" : "diagnosis_parkinsons_gsd_category_2_calculation", "text" : "Category 2 Criteria Met", "type" : "string" }, { "linkId" : "diagnosis_parkinsons_gsd_category_3", "text" : "Category 3 - Supportive criteria", "type" : "string" }, { "linkId" : "diagnosis_parkinsons_gsd_category_3_calculation", "text" : "Category 3 Criteria Met", "type" : "string" }, { "linkId" : "diagnosis_parkinsons_gsd_calculation", "text" : "Does the patient meet the diagnostic criteria for Parkinson's Disease (Parkinsonism) based on the criteria above?", "type" : "string" }, { "linkId" : "diagnosis_parkinsons_disease_subtype", "text" : "2. Disease Type: Specify the subtype of Parkinson's Disease in the patient:", "type" : "choice", "answerOption" : [{ "valueString" : "Idiopathic Parkinson's Disease (IPD)" }, { "valueString" : "Multiple System Atrophy (MSA)" }, { "valueString" : "Progressive Supranuclear Palsy (PSP)" }, { "valueString" : "Corticobasal Degeneration (CBD)" }, { "valueString" : "Dementia with Lewy Bodies (DLB)" }, { "valueString" : "Other Parkinsonism or Atypical Parkinsonism" }, { "valueString" : "Not Sure / Undetermined" }] }, { "linkId" : "diagnosis_parkinsons_disease_subtype_other", "text" : "If you selected \"Other Parkinsonism or Atypical Parkinsonism\", please specify:", "type" : "string", "enableWhen" : [{ "question" : "diagnosis_parkinsons_disease_subtype", "operator" : "=", "answerString" : "'other'" }] }, { "linkId" : "diagnosis_parkinsons_etiology", "text" : "3. Etiology: What is the suspected or known etiology of Parkinson's disease in the patient?", "type" : "choice", "answerOption" : [{ "valueString" : "Idiopathic (unknown cause)" }, { "valueString" : "Familial Parkinson's Disease" }, { "valueString" : "Environmental factors" }] }, { "linkId" : "diagnosis_parkinsons_etiology_fpd", "text" : "If you selected \"Familial Parkinson's Disease\", please specify the genetic mutation if known:", "type" : "string", "enableWhen" : [{ "question" : "diagnosis_parkinsons_etiology", "operator" : "=", "answerString" : "'familialParkinsonsDisease'" }] }, { "linkId" : "diagnosis_parkinsons_etiology_ef", "text" : "If you selected \"Environmental Factors\", please specify if known:", "type" : "string", "enableWhen" : [{ "question" : "diagnosis_parkinsons_etiology", "operator" : "=", "answerString" : "'environmentalFactors'" }] }, { "linkId" : "diagnosis_parkinsons_ds", "text" : "4. Disease Severity: What is the current stage/severity of Parkinson's disease in the patient?\n•\tHoehn and Yahr Scale:", "type" : "choice", "answerOption" : [{ "valueString" : "Stage 1 (Unilateral involvement only)" }, { "valueString" : "Stage 2 (Bilateral involvement without impairment of balance)" }, { "valueString" : "Stage 3 (Bilateral involvement with mild to moderate impairment of balance)" }, { "valueString" : "Stage 4 (Severe disability but still able to walk or stand unassisted)" }, { "valueString" : "Stage 5 (Wheelchair-bound or bedridden unless aided)" }] }, { "linkId" : "diagnosis_parkinsons_ma", "text" : "5. Motor Assessment: Please provide scores or results from validated cognitive assessment tools:", "type" : "string" }, { "linkId" : "diagnosis_parkinsons_ma_uprds", "text" : "Unified Parkinson's Disease Rating Scale (UPDRS)", "type" : "choice", "enableWhen" : [{ "question" : "diagnosis_parkinsons_ma", "operator" : "=", "answerString" : "1" }], "answerOption" : [{ "valueString" : "Part I (Intellectual function mood behavior) score" }, { "valueString" : "Part II (Activities of daily living) score" }, { "valueString" : "Part III (Motor Examination) score" }, { "valueString" : "Part IV (Motor complications) score" }] }, { "linkId" : "diagnosis_parkinsons_ma_updrs_part_i_score", "text" : "Part I (Intellectual function, mood, behavior) score:", "type" : "string", "enableWhen" : [{ "question" : "diagnosis_parkinsons_ma_uprds", "operator" : "=", "answerString" : "'partI'" }] }, { "linkId" : "diagnosis_parkinsons_ma_updrs_part_ii_score", "text" : "Part II (Activities of daily living) score:", "type" : "string", "enableWhen" : [{ "question" : "diagnosis_parkinsons_ma_uprds", "operator" : "=", "answerString" : "'partII'" }] }, { "linkId" : "diagnosis_parkinsons_ma_updrs_part_iii_score", "text" : "Part III (Motor Examination) score:", "type" : "string", "enableWhen" : [{ "question" : "diagnosis_parkinsons_ma_uprds", "operator" : "=", "answerString" : "'partIII'" }] }, { "linkId" : "diagnosis_parkinsons_ma_updrs_part_iv_score", "text" : "Part IV (Motor complications) score:", "type" : "string", "enableWhen" : [{ "question" : "diagnosis_parkinsons_ma_uprds", "operator" : "=", "answerString" : "'partIV'" }] }, { "linkId" : "diagnosis_parkinsons_ma_other", "text" : "If you selected \"Other motor assessment tool\", please specify:", "type" : "string", "enableWhen" : [{ "question" : "diagnosis_parkinsons_ma", "operator" : "=", "answerString" : "1" }] }, { "linkId" : "diagnosis_parkinsons_non_motor_symptoms", "text" : "6. Non-Motor Symptoms: Are there significant non-motor symptoms associated with Parkinson's disease in the patient?", "type" : "choice", "answerOption" : [{ "valueString" : "Yes" }, { "valueString" : "No" }] }, { "linkId" : "diagnosis_parkinsons_non_motor_symptoms_yes", "text" : "If you selected \"Yes\", please specify:", "type" : "string", "enableWhen" : [{ "question" : "diagnosis_parkinsons_non_motor_symptoms", "operator" : "=", "answerString" : "'yes'" }] }, { "linkId" : "diagnosis_parkinsons_treatment_obtained", "text" : "7. Treatment Obtained: Has the patient undergone any treatment for Parkinson's disease?", "type" : "choice", "answerOption" : [{ "valueString" : "Yes" }, { "valueString" : "No" }] }, { "linkId" : "diagnosis_parkinsons_treatment_obtained_yes", "text" : "Yes", "type" : "string", "enableWhen" : [{ "question" : "diagnosis_parkinsons_treatment_obtained", "operator" : "=", "answerString" : "'yes'" }] }, { "linkId" : "diagnosis_parkinsons_treatment_obtained_yes_medications", "text" : "Medications:", "type" : "string", "enableWhen" : [{ "question" : "diagnosis_parkinsons_treatment_obtained", "operator" : "=", "answerString" : "'yes'" }, { "question" : "diagnosis_parkinsons_treatment_obtained_yes", "operator" : "=", "answerString" : "1" }], "enableBehavior" : "all" }, { "linkId" : "diagnosis_parkinsons_treatment_obtained_yes_medications_other", "text" : "If you selected \"Other\", please specify:", "type" : "string", "enableWhen" : [{ "question" : "diagnosis_parkinsons_treatment_obtained", "operator" : "=", "answerString" : "'yes'" }, { "question" : "diagnosis_parkinsons_treatment_obtained_yes", "operator" : "=", "answerString" : "1" }, { "question" : "diagnosis_parkinsons_treatment_obtained_yes_medications", "operator" : "=", "answerString" : "1" }], "enableBehavior" : "all" }, { "linkId" : "diagnosis_parkinsons_treatment_obtained_yes_npi", "text" : "Non-pharmacological interventions:", "type" : "string", "enableWhen" : [{ "question" : "diagnosis_parkinsons_treatment_obtained", "operator" : "=", "answerString" : "'yes'" }, { "question" : "diagnosis_parkinsons_treatment_obtained_yes", "operator" : "=", "answerString" : "1" }], "enableBehavior" : "all" }, { "linkId" : "diagnosis_parkinsons_treatment_obtained_yes_npi_other", "text" : "If you selected \"Other\", please specify:", "type" : "string", "enableWhen" : [{ "question" : "diagnosis_parkinsons_treatment_obtained", "operator" : "=", "answerString" : "'yes'" }, { "question" : "diagnosis_parkinsons_treatment_obtained_yes", "operator" : "=", "answerString" : "1" }, { "question" : "diagnosis_parkinsons_treatment_obtained_yes_npi", "operator" : "=", "answerString" : "1" }], "enableBehavior" : "all" }] }