Structure LinkID Text Cardinality Type Description & Constraints Questionnaire https://kind-lab.github.io/vbai-fhir/Questionnaire-dneuroparkinsonsdiseaseschema#2.2.0 diagnosis_parkinsons_gsd_category_1 1. Gold Standard Diagnosis Does the patient meet the diagnostic criteria for Parkinson's Disease (Parkinsonism) based on presence of:: Category 1 - Parkinsonism 0..1 string diagnosis_parkinsons_gsd_category_1_calculation Category 1 Criteria Met 0..1 string diagnosis_parkinsons_gsd_category_2 Category 2 - Exclusion criteria 0..1 string diagnosis_parkinsons_gsd_category_2_calculation Category 2 Criteria Met 0..1 string diagnosis_parkinsons_gsd_category_3 Category 3 - Supportive criteria 0..1 string diagnosis_parkinsons_gsd_category_3_calculation Category 3 Criteria Met 0..1 string diagnosis_parkinsons_gsd_calculation Does the patient meet the diagnostic criteria for Parkinson's Disease (Parkinsonism) based on the criteria above? 0..1 string diagnosis_parkinsons_disease_subtype 2. Disease Type: Specify the subtype of Parkinson's Disease in the patient: 0..1 choice Options: 7 options diagnosis_parkinsons_disease_subtype_other If you selected "Other Parkinsonism or Atypical Parkinsonism", please specify: 0..1 string Enable When: diagnosis_parkinsons_disease_subtype = 'other' diagnosis_parkinsons_etiology 3. Etiology: What is the suspected or known etiology of Parkinson's disease in the patient? 0..1 choice Options: 3 options diagnosis_parkinsons_etiology_fpd If you selected "Familial Parkinson's Disease", please specify the genetic mutation if known: 0..1 string Enable When: diagnosis_parkinsons_etiology = 'familialParkinsonsDisease' diagnosis_parkinsons_etiology_ef If you selected "Environmental Factors", please specify if known: 0..1 string Enable When: diagnosis_parkinsons_etiology = 'environmentalFactors' diagnosis_parkinsons_ds 4. Disease Severity: What is the current stage/severity of Parkinson's disease in the patient? • Hoehn and Yahr Scale: 0..1 choice Options: 5 options diagnosis_parkinsons_ma 5. Motor Assessment: Please provide scores or results from validated cognitive assessment tools: 0..1 string diagnosis_parkinsons_ma_uprds Unified Parkinson's Disease Rating Scale (UPDRS) 0..1 choice Enable When: diagnosis_parkinsons_ma = 1 Options: 4 options diagnosis_parkinsons_ma_updrs_part_i_score Part I (Intellectual function, mood, behavior) score: 0..1 string Enable When: diagnosis_parkinsons_ma_uprds = 'partI' diagnosis_parkinsons_ma_updrs_part_ii_score Part II (Activities of daily living) score: 0..1 string Enable When: diagnosis_parkinsons_ma_uprds = 'partII' diagnosis_parkinsons_ma_updrs_part_iii_score Part III (Motor Examination) score: 0..1 string Enable When: diagnosis_parkinsons_ma_uprds = 'partIII' diagnosis_parkinsons_ma_updrs_part_iv_score Part IV (Motor complications) score: 0..1 string Enable When: diagnosis_parkinsons_ma_uprds = 'partIV' diagnosis_parkinsons_ma_other If you selected "Other motor assessment tool", please specify: 0..1 string Enable When: diagnosis_parkinsons_ma = 1 diagnosis_parkinsons_non_motor_symptoms 6. Non-Motor Symptoms: Are there significant non-motor symptoms associated with Parkinson's disease in the patient? 0..1 choice Options: 2 options diagnosis_parkinsons_non_motor_symptoms_yes If you selected "Yes", please specify: 0..1 string Enable When: diagnosis_parkinsons_non_motor_symptoms = 'yes' diagnosis_parkinsons_treatment_obtained 7. Treatment Obtained: Has the patient undergone any treatment for Parkinson's disease? 0..1 choice Options: 2 options diagnosis_parkinsons_treatment_obtained_yes Yes 0..1 string Enable When: diagnosis_parkinsons_treatment_obtained = 'yes' diagnosis_parkinsons_treatment_obtained_yes_medications Medications: 0..1 string Enable When: diagnosis_parkinsons_treatment_obtained = 'yes' diagnosis_parkinsons_treatment_obtained_yes = 1 diagnosis_parkinsons_treatment_obtained_yes_medications_other If you selected "Other", please specify: 0..1 string Enable When: diagnosis_parkinsons_treatment_obtained = 'yes' diagnosis_parkinsons_treatment_obtained_yes = 1 diagnosis_parkinsons_treatment_obtained_yes_medications = 1 diagnosis_parkinsons_treatment_obtained_yes_npi Non-pharmacological interventions: 0..1 string Enable When: diagnosis_parkinsons_treatment_obtained = 'yes' diagnosis_parkinsons_treatment_obtained_yes = 1 diagnosis_parkinsons_treatment_obtained_yes_npi_other If you selected "Other", please specify: 0..1 string Enable When: diagnosis_parkinsons_treatment_obtained = 'yes' diagnosis_parkinsons_treatment_obtained_yes = 1 diagnosis_parkinsons_treatment_obtained_yes_npi = 1 Documentation for this format Options Sets Answer options for diagnosis_parkinsons_disease_subtype Idiopathic Parkinson's Disease (IPD) Multiple System Atrophy (MSA) Progressive Supranuclear Palsy (PSP) Corticobasal Degeneration (CBD) Dementia with Lewy Bodies (DLB) Other Parkinsonism or Atypical Parkinsonism Not Sure / Undetermined Answer options for diagnosis_parkinsons_etiology Idiopathic (unknown cause) Familial Parkinson's Disease Environmental factors Answer options for diagnosis_parkinsons_ds Stage 1 (Unilateral involvement only) Stage 2 (Bilateral involvement without impairment of balance) Stage 3 (Bilateral involvement with mild to moderate impairment of balance) Stage 4 (Severe disability but still able to walk or stand unassisted) Stage 5 (Wheelchair-bound or bedridden unless aided) Answer options for diagnosis_parkinsons_ma_uprds Part I (Intellectual function mood behavior) score Part II (Activities of daily living) score Part III (Motor Examination) score Part IV (Motor complications) score Answer options for diagnosis_parkinsons_non_motor_symptoms Yes No Answer options for diagnosis_parkinsons_treatment_obtained Yes No
1. Gold Standard Diagnosis Does the patient meet the diagnostic criteria for Parkinson's Disease (Parkinsonism) based on presence of:: Category 1 - Parkinsonism
Does the patient meet the diagnostic criteria for Parkinson's Disease (Parkinsonism) based on the criteria above?
2. Disease Type: Specify the subtype of Parkinson's Disease in the patient:
Other Parkinsonism or Atypical Parkinsonism
If you selected "Other Parkinsonism or Atypical Parkinsonism", please specify:
3. Etiology: What is the suspected or known etiology of Parkinson's disease in the patient?
If you selected "Familial Parkinson's Disease", please specify the genetic mutation if known:
If you selected "Environmental Factors", please specify if known:
4. Disease Severity: What is the current stage/severity of Parkinson's disease in the patient? • Hoehn and Yahr Scale:
Stage 2 (Bilateral involvement without impairment of balance)
Stage 3 (Bilateral involvement with mild to moderate impairment of balance)
Stage 4 (Severe disability but still able to walk or stand unassisted)
Stage 5 (Wheelchair-bound or bedridden unless aided)
5. Motor Assessment: Please provide scores or results from validated cognitive assessment tools:
Unified Parkinson's Disease Rating Scale (UPDRS)
Part I (Intellectual function mood behavior) score
Part II (Activities of daily living) score
Part I (Intellectual function, mood, behavior) score:
Part II (Activities of daily living) score:
If you selected "Other motor assessment tool", please specify:
6. Non-Motor Symptoms: Are there significant non-motor symptoms associated with Parkinson's disease in the patient?
7. Treatment Obtained: Has the patient undergone any treatment for Parkinson's disease?
If you selected "Other", please specify: