Structure
LinkIDTextCardinalityTypeDescription & Constraintsdoco
.. Questionnairehttps://kind-lab.github.io/vbai-fhir/Questionnaire-dneuroparkinsonsdiseaseschema#2.2.0
... diagnosis_parkinsons_gsd_category_11. Gold Standard Diagnosis Does the patient meet the diagnostic criteria for Parkinson's Disease (Parkinsonism) based on presence of:: Category 1 - Parkinsonism0..1string
... diagnosis_parkinsons_gsd_category_1_calculationCategory 1 Criteria Met0..1string
... diagnosis_parkinsons_gsd_category_2Category 2 - Exclusion criteria0..1string
... diagnosis_parkinsons_gsd_category_2_calculationCategory 2 Criteria Met0..1string
... diagnosis_parkinsons_gsd_category_3Category 3 - Supportive criteria0..1string
... diagnosis_parkinsons_gsd_category_3_calculationCategory 3 Criteria Met0..1string
... diagnosis_parkinsons_gsd_calculationDoes the patient meet the diagnostic criteria for Parkinson's Disease (Parkinsonism) based on the criteria above?0..1string
... diagnosis_parkinsons_disease_subtype2. Disease Type: Specify the subtype of Parkinson's Disease in the patient:0..1choiceOptions: 7 options
... diagnosis_parkinsons_disease_subtype_otherIf you selected "Other Parkinsonism or Atypical Parkinsonism", please specify:0..1stringEnable When: diagnosis_parkinsons_disease_subtype = 'other'
... diagnosis_parkinsons_etiology3. Etiology: What is the suspected or known etiology of Parkinson's disease in the patient?0..1choiceOptions: 3 options
... diagnosis_parkinsons_etiology_fpdIf you selected "Familial Parkinson's Disease", please specify the genetic mutation if known:0..1stringEnable When: diagnosis_parkinsons_etiology = 'familialParkinsonsDisease'
... diagnosis_parkinsons_etiology_efIf you selected "Environmental Factors", please specify if known:0..1stringEnable When: diagnosis_parkinsons_etiology = 'environmentalFactors'
... diagnosis_parkinsons_ds4. Disease Severity: What is the current stage/severity of Parkinson's disease in the patient? • Hoehn and Yahr Scale:0..1choiceOptions: 5 options
... diagnosis_parkinsons_ma5. Motor Assessment: Please provide scores or results from validated cognitive assessment tools:0..1string
... diagnosis_parkinsons_ma_uprdsUnified Parkinson's Disease Rating Scale (UPDRS)0..1choiceEnable When: diagnosis_parkinsons_ma = 1
Options: 4 options
... diagnosis_parkinsons_ma_updrs_part_i_scorePart I (Intellectual function, mood, behavior) score:0..1stringEnable When: diagnosis_parkinsons_ma_uprds = 'partI'
... diagnosis_parkinsons_ma_updrs_part_ii_scorePart II (Activities of daily living) score:0..1stringEnable When: diagnosis_parkinsons_ma_uprds = 'partII'
... diagnosis_parkinsons_ma_updrs_part_iii_scorePart III (Motor Examination) score:0..1stringEnable When: diagnosis_parkinsons_ma_uprds = 'partIII'
... diagnosis_parkinsons_ma_updrs_part_iv_scorePart IV (Motor complications) score:0..1stringEnable When: diagnosis_parkinsons_ma_uprds = 'partIV'
... diagnosis_parkinsons_ma_otherIf you selected "Other motor assessment tool", please specify:0..1stringEnable When: diagnosis_parkinsons_ma = 1
... diagnosis_parkinsons_non_motor_symptoms6. Non-Motor Symptoms: Are there significant non-motor symptoms associated with Parkinson's disease in the patient?0..1choiceOptions: 2 options
... diagnosis_parkinsons_non_motor_symptoms_yesIf you selected "Yes", please specify:0..1stringEnable When: diagnosis_parkinsons_non_motor_symptoms = 'yes'
... diagnosis_parkinsons_treatment_obtained7. Treatment Obtained: Has the patient undergone any treatment for Parkinson's disease?0..1choiceOptions: 2 options
... diagnosis_parkinsons_treatment_obtained_yesYes0..1stringEnable When: diagnosis_parkinsons_treatment_obtained = 'yes'
... diagnosis_parkinsons_treatment_obtained_yes_medicationsMedications:0..1stringEnable When:
... diagnosis_parkinsons_treatment_obtained_yes_medications_otherIf you selected "Other", please specify:0..1stringEnable When:
... diagnosis_parkinsons_treatment_obtained_yes_npiNon-pharmacological interventions:0..1stringEnable When:
... diagnosis_parkinsons_treatment_obtained_yes_npi_otherIf you selected "Other", please specify:0..1stringEnable When:

doco Documentation for this format

Options Sets

Answer options for diagnosis_parkinsons_disease_subtype

  • Idiopathic Parkinson's Disease (IPD)
  • Multiple System Atrophy (MSA)
  • Progressive Supranuclear Palsy (PSP)
  • Corticobasal Degeneration (CBD)
  • Dementia with Lewy Bodies (DLB)
  • Other Parkinsonism or Atypical Parkinsonism
  • Not Sure / Undetermined

Answer options for diagnosis_parkinsons_etiology

  • Idiopathic (unknown cause)
  • Familial Parkinson's Disease
  • Environmental factors

Answer options for diagnosis_parkinsons_ds

  • Stage 1 (Unilateral involvement only)
  • Stage 2 (Bilateral involvement without impairment of balance)
  • Stage 3 (Bilateral involvement with mild to moderate impairment of balance)
  • Stage 4 (Severe disability but still able to walk or stand unassisted)
  • Stage 5 (Wheelchair-bound or bedridden unless aided)

Answer options for diagnosis_parkinsons_ma_uprds

  • Part I (Intellectual function mood behavior) score
  • Part II (Activities of daily living) score
  • Part III (Motor Examination) score
  • Part IV (Motor complications) score

Answer options for diagnosis_parkinsons_non_motor_symptoms

  • Yes
  • No

Answer options for diagnosis_parkinsons_treatment_obtained

  • Yes
  • No
 <status value="active"/> <date value="2024-05-29T18:29:19Z"/> <publisher value="KinD Lab"/> <contact> <name value="KinD Lab"/> <telecom> <system value="url"/> <value value="http://fhir.kindlab.sickkids.ca"/> </telecom> </contact> <item> <linkId value="diagnosis_parkinsons_gsd_category_1"/> <text value="1. Gold Standard Diagnosis Does the patient meet the diagnostic criteria for Parkinson's Disease (Parkinsonism) based on presence of:: Category 1 - Parkinsonism"/> <type value="string"/> </item> <item> <linkId value="diagnosis_parkinsons_gsd_category_1_calculation"/> <text value="Category 1 Criteria Met"/> <type value="string"/> </item> <item> <linkId value="diagnosis_parkinsons_gsd_category_2"/> <text value="Category 2 - Exclusion criteria"/> <type value="string"/> </item> <item> <linkId value="diagnosis_parkinsons_gsd_category_2_calculation"/> <text value="Category 2 Criteria Met"/> <type value="string"/> </item> <item> <linkId value="diagnosis_parkinsons_gsd_category_3"/> <text value="Category 3 - Supportive criteria"/> <type value="string"/> </item> <item> <linkId value="diagnosis_parkinsons_gsd_category_3_calculation"/> <text value="Category 3 Criteria Met"/> <type value="string"/> </item> <item> <linkId value="diagnosis_parkinsons_gsd_calculation"/> <text value="Does the patient meet the diagnostic criteria for Parkinson's Disease (Parkinsonism) based on the criteria above?"/> <type value="string"/> </item> <item> <linkId value="diagnosis_parkinsons_disease_subtype"/> <text value="2. Disease Type: Specify the subtype of Parkinson's Disease in the patient:"/> <type value="choice"/> <answerOption> <valueString value="Idiopathic Parkinson's Disease (IPD)"/> </answerOption> <answerOption> <valueString value="Multiple System Atrophy (MSA)"/> </answerOption> <answerOption> <valueString value="Progressive Supranuclear Palsy (PSP)"/> </answerOption> <answerOption> <valueString value="Corticobasal Degeneration (CBD)"/> </answerOption> <answerOption> <valueString value="Dementia with Lewy Bodies (DLB)"/> </answerOption> <answerOption> <valueString value="Other Parkinsonism or Atypical Parkinsonism"/> </answerOption> <answerOption> <valueString value="Not Sure / Undetermined"/> </answerOption> </item> <item> <linkId value="diagnosis_parkinsons_disease_subtype_other"/> <text value="If you selected "Other Parkinsonism or Atypical Parkinsonism", please specify:"/> <type value="string"/> <enableWhen> <question value="diagnosis_parkinsons_disease_subtype"/> <operator value="="/> <answerString value="'other'"/> </enableWhen> </item> <item> <linkId value="diagnosis_parkinsons_etiology"/> <text value="3. Etiology: What is the suspected or known etiology of Parkinson's disease in the patient?"/> <type value="choice"/> <answerOption> <valueString value="Idiopathic (unknown cause)"/> </answerOption> <answerOption> <valueString value="Familial Parkinson's Disease"/> </answerOption> <answerOption> <valueString value="Environmental factors"/> </answerOption> </item> <item> <linkId value="diagnosis_parkinsons_etiology_fpd"/> <text value="If you selected "Familial Parkinson's Disease", please specify the genetic mutation if known:"/> <type value="string"/> <enableWhen> <question value="diagnosis_parkinsons_etiology"/> <operator value="="/> <answerString value="'familialParkinsonsDisease'"/> </enableWhen> </item> <item> <linkId value="diagnosis_parkinsons_etiology_ef"/> <text value="If you selected "Environmental Factors", please specify if known:"/> <type value="string"/> <enableWhen> <question value="diagnosis_parkinsons_etiology"/> <operator value="="/> <answerString value="'environmentalFactors'"/> </enableWhen> </item> <item> <linkId value="diagnosis_parkinsons_ds"/> <text value="4. Disease Severity: What is the current stage/severity of Parkinson's disease in the patient? • Hoehn and Yahr Scale:"/> <type value="choice"/> <answerOption> <valueString value="Stage 1 (Unilateral involvement only)"/> </answerOption> <answerOption> <valueString value="Stage 2 (Bilateral involvement without impairment of balance)"/> </answerOption> <answerOption> <valueString value="Stage 3 (Bilateral involvement with mild to moderate impairment of balance)"/> </answerOption> <answerOption> <valueString value="Stage 4 (Severe disability but still able to walk or stand unassisted)"/> </answerOption> <answerOption> <valueString value="Stage 5 (Wheelchair-bound or bedridden unless aided)"/> </answerOption> </item> <item> <linkId value="diagnosis_parkinsons_ma"/> <text value="5. Motor Assessment: Please provide scores or results from validated cognitive assessment tools:"/> <type value="string"/> </item> <item> <linkId value="diagnosis_parkinsons_ma_uprds"/> <text value="Unified Parkinson's Disease Rating Scale (UPDRS)"/> <type value="choice"/> <enableWhen> <question value="diagnosis_parkinsons_ma"/> <operator value="="/> <answerString value="1"/> </enableWhen> <answerOption> <valueString value="Part I (Intellectual function mood behavior) score"/> </answerOption> <answerOption> <valueString value="Part II (Activities of daily living) score"/> </answerOption> <answerOption> <valueString value="Part III (Motor Examination) score"/> </answerOption> <answerOption> <valueString value="Part IV (Motor complications) score"/> </answerOption> </item> <item> <linkId value="diagnosis_parkinsons_ma_updrs_part_i_score"/> <text value="Part I (Intellectual function, mood, behavior) score:"/> <type value="string"/> <enableWhen> <question value="diagnosis_parkinsons_ma_uprds"/> <operator value="="/> <answerString value="'partI'"/> </enableWhen> </item> <item> <linkId value="diagnosis_parkinsons_ma_updrs_part_ii_score"/> <text value="Part II (Activities of daily living) score:"/> <type value="string"/> <enableWhen> <question value="diagnosis_parkinsons_ma_uprds"/> <operator value="="/> <answerString value="'partII'"/> </enableWhen> </item> <item> <linkId value="diagnosis_parkinsons_ma_updrs_part_iii_score"/> <text value="Part III (Motor Examination) score:"/> <type value="string"/> <enableWhen> <question value="diagnosis_parkinsons_ma_uprds"/> <operator value="="/> <answerString value="'partIII'"/> </enableWhen> </item> <item> <linkId value="diagnosis_parkinsons_ma_updrs_part_iv_score"/> <text value="Part IV (Motor complications) score:"/> <type value="string"/> <enableWhen> <question value="diagnosis_parkinsons_ma_uprds"/> <operator value="="/> <answerString value="'partIV'"/> </enableWhen> </item> <item> <linkId value="diagnosis_parkinsons_ma_other"/> <text value="If you selected "Other motor assessment tool", please specify:"/> <type value="string"/> <enableWhen> <question value="diagnosis_parkinsons_ma"/> <operator value="="/> <answerString value="1"/> </enableWhen> </item> <item> <linkId value="diagnosis_parkinsons_non_motor_symptoms"/> <text value="6. Non-Motor Symptoms: Are there significant non-motor symptoms associated with Parkinson's disease in the patient?"/> <type value="choice"/> <answerOption> <valueString value="Yes"/> </answerOption> <answerOption> <valueString value="No"/> </answerOption> </item> <item> <linkId value="diagnosis_parkinsons_non_motor_symptoms_yes"/> <text value="If you selected "Yes", please specify:"/> <type value="string"/> <enableWhen> <question value="diagnosis_parkinsons_non_motor_symptoms"/> <operator value="="/> <answerString value="'yes'"/> </enableWhen> </item> <item> <linkId value="diagnosis_parkinsons_treatment_obtained"/> <text value="7. Treatment Obtained: Has the patient undergone any treatment for Parkinson's disease?"/> <type value="choice"/> <answerOption> <valueString value="Yes"/> </answerOption> <answerOption> <valueString value="No"/> </answerOption> </item> <item> <linkId value="diagnosis_parkinsons_treatment_obtained_yes"/> <text value="Yes"/> <type value="string"/> <enableWhen> <question value="diagnosis_parkinsons_treatment_obtained"/> <operator value="="/> <answerString value="'yes'"/> </enableWhen> </item> <item> <linkId value="diagnosis_parkinsons_treatment_obtained_yes_medications"/> <text value="Medications:"/> <type value="string"/> <enableWhen> <question value="diagnosis_parkinsons_treatment_obtained"/> <operator value="="/> <answerString value="'yes'"/> </enableWhen> <enableWhen> <question value="diagnosis_parkinsons_treatment_obtained_yes"/> <operator value="="/> <answerString value="1"/> </enableWhen> <enableBehavior value="all"/> </item> <item> <linkId value="diagnosis_parkinsons_treatment_obtained_yes_medications_other"/> <text value="If you selected "Other", please specify:"/> <type value="string"/> <enableWhen> <question value="diagnosis_parkinsons_treatment_obtained"/> <operator value="="/> <answerString value="'yes'"/> </enableWhen> <enableWhen> <question value="diagnosis_parkinsons_treatment_obtained_yes"/> <operator value="="/> <answerString value="1"/> </enableWhen> <enableWhen> <question value="diagnosis_parkinsons_treatment_obtained_yes_medications"/> <operator value="="/> <answerString value="1"/> </enableWhen> <enableBehavior value="all"/> </item> <item> <linkId value="diagnosis_parkinsons_treatment_obtained_yes_npi"/> <text value="Non-pharmacological interventions:"/> <type value="string"/> <enableWhen> <question value="diagnosis_parkinsons_treatment_obtained"/> <operator value="="/> <answerString value="'yes'"/> </enableWhen> <enableWhen> <question value="diagnosis_parkinsons_treatment_obtained_yes"/> <operator value="="/> <answerString value="1"/> </enableWhen> <enableBehavior value="all"/> </item> <item> <linkId value="diagnosis_parkinsons_treatment_obtained_yes_npi_other"/> <text value="If you selected "Other", please specify:"/> <type value="string"/> <enableWhen> <question value="diagnosis_parkinsons_treatment_obtained"/> <operator value="="/> <answerString value="'yes'"/> </enableWhen> <enableWhen> <question value="diagnosis_parkinsons_treatment_obtained_yes"/> <operator value="="/> <answerString value="1"/> </enableWhen> <enableWhen> <question value="diagnosis_parkinsons_treatment_obtained_yes_npi"/> <operator value="="/> <answerString value="1"/> </enableWhen> <enableBehavior value="all"/> </item> </Questionnaire>