Structure
"
] ; #
fhir:url [ fhir:v "https://kind-lab.github.io/vbai-fhir/Questionnaire-dvoicevocalfoldparalysisschema"^^xsd:anyURI] ; #
fhir:version [ fhir:v "2.2.0"] ; #
fhir:title [ fhir:v "d_voice_vocal_fold_paralysis_schema"] ; #
fhir:status [ fhir:v "active"] ; #
fhir:date [ fhir:v "2024-05-29T18:29:24Z"^^xsd:dateTime] ; #
fhir:publisher [ fhir:v "KinD Lab"] ; #
fhir:contact ( [
fhir:name [ fhir:v "KinD Lab" ] ;
fhir:telecom ( [
fhir:system [ fhir:v "url" ] ;
fhir:value [ fhir:v "http://fhir.kindlab.sickkids.ca" ]
] )
] ) ; #
fhir:item ( [
fhir:linkId [ fhir:v "diagnosis_vfp_gsd" ] ;
fhir:text [ fhir:v "1. Gold Standard Diagnosis: Does the patient have VFP confirmed by laryngoscopy/stroboscopy?" ] ;
fhir:type [ fhir:v "choice" ] ;
fhir:answerOption ( [
fhir:value [ fhir:v "No" ]
] [
fhir:value [ fhir:v "Yes" ]
] [
fhir:value [ fhir:v "Not certain" ]
] )
] [
fhir:linkId [ fhir:v "diagnosis_vfp_ds" ] ;
fhir:text [ fhir:v "2. Disease Subtype: Which side is the paralysis?" ] ;
fhir:type [ fhir:v "choice" ] ;
fhir:answerOption ( [
fhir:value [ fhir:v "Left" ]
] [
fhir:value [ fhir:v "Right" ]
] )
] [
fhir:linkId [ fhir:v "diagnosis_vfp_etiology" ] ;
fhir:text [ fhir:v "3. Etiology: What is the etiology?" ] ;
fhir:type [ fhir:v "choice" ] ;
fhir:answerOption ( [
fhir:value [ fhir:v "Idiopathic" ]
] [
fhir:value [ fhir:v "Iatrogenic (surgery/intubation)" ]
] [
fhir:value [ fhir:v "Tumor invading RLN" ]
] [
fhir:value [ fhir:v "Radiation" ]
] )
] [
fhir:linkId [ fhir:v "diagnosis_vfp_iatrogenic" ] ;
fhir:text [ fhir:v "Iatrogenic (surgery/intubation) subcategory" ] ;
fhir:type [ fhir:v "choice" ] ;
fhir:enableWhen ( [
fhir:question [ fhir:v "diagnosis_vfp_etiology" ] ;
fhir:operator [ fhir:v "=" ] ;
fhir:answer [ fhir:v "2" ]
] ) ;
fhir:answerOption ( [
fhir:value [ fhir:v "Thyroidectomy" ]
] [
fhir:value [ fhir:v "ACDF" ]
] [
fhir:value [ fhir:v "Lung surgery" ]
] [
fhir:value [ fhir:v "Heart Surgery" ]
] [
fhir:value [ fhir:v "Intubation" ]
] [
fhir:value [ fhir:v "Brain Surgery" ]
] )
] [
fhir:linkId [ fhir:v "diagnosis_vfp_tumor" ] ;
fhir:text [ fhir:v "Tumor invading RLN - Subcategory" ] ;
fhir:type [ fhir:v "choice" ] ;
fhir:enableWhen ( [
fhir:question [ fhir:v "diagnosis_vfp_etiology" ] ;
fhir:operator [ fhir:v "=" ] ;
fhir:answer [ fhir:v "3" ]
] ) ;
fhir:answerOption ( [
fhir:value [ fhir:v "Brain" ]
] [
fhir:value [ fhir:v "Chest" ]
] [
fhir:value [ fhir:v "Neck" ]
] )
] [
fhir:linkId [ fhir:v "diagnosis_vfp_dse" ] ;
fhir:text [ fhir:v "4. Disease Severity: Degree of Glottic Gap" ] ;
fhir:type [ fhir:v "choice" ] ;
fhir:answerOption ( [
fhir:value [ fhir:v "Small" ]
] [
fhir:value [ fhir:v "Moderate" ]
] [
fhir:value [ fhir:v "Large" ]
] )
] [
fhir:linkId [ fhir:v "diagnosis_vfp_degree_text" ] ;
fhir:text [ fhir:v "Degree of dysphonia\n\nCAPE-V scale" ] ;
fhir:type [ fhir:v "string" ]
] [
fhir:linkId [ fhir:v "diagnosis_vfp_degree_legend" ] ;
fhir:text [ fhir:v "Legend:C- Sonsistent I = IntermittentMI = Mildly DeviantMO = Moderately DeviantSE = Severely Deviant" ] ;
fhir:type [ fhir:v "string" ]
] [
fhir:linkId [ fhir:v "diagnosis_degree_os" ] ;
fhir:text [ fhir:v "Overall Severity" ] ;
fhir:type [ fhir:v "string" ]
] [
fhir:linkId [ fhir:v "diagnosis_degree_os_2" ] ;
fhir:text [ fhir:v "Overall Severity" ] ;
fhir:type [ fhir:v "choice" ] ;
fhir:answerOption ( [
fhir:value [ fhir:v "Consistent" ]
] [
fhir:value [ fhir:v "Intermittent" ]
] )
] [
fhir:linkId [ fhir:v "diagnosis_degree_r" ] ;
fhir:text [ fhir:v "Roughness" ] ;
fhir:type [ fhir:v "string" ]
] [
fhir:linkId [ fhir:v "diagnosis_degree_r_2" ] ;
fhir:text [ fhir:v "Roughness" ] ;
fhir:type [ fhir:v "choice" ] ;
fhir:answerOption ( [
fhir:value [ fhir:v "Consistent" ]
] [
fhir:value [ fhir:v "Intermittent" ]
] )
] [
fhir:linkId [ fhir:v "diagnosis_degree_b" ] ;
fhir:text [ fhir:v "Breathiness" ] ;
fhir:type [ fhir:v "string" ]
] [
fhir:linkId [ fhir:v "diagnosis_degree_b_2" ] ;
fhir:text [ fhir:v "Breathiness" ] ;
fhir:type [ fhir:v "choice" ] ;
fhir:answerOption ( [
fhir:value [ fhir:v "Consistent" ]
] [
fhir:value [ fhir:v "Intermittent" ]
] )
] [
fhir:linkId [ fhir:v "diagnosis_degree_s" ] ;
fhir:text [ fhir:v "Strain" ] ;
fhir:type [ fhir:v "string" ]
] [
fhir:linkId [ fhir:v "diagnosis_degree_s_2" ] ;
fhir:text [ fhir:v "Strain" ] ;
fhir:type [ fhir:v "choice" ] ;
fhir:answerOption ( [
fhir:value [ fhir:v "Consistent" ]
] [
fhir:value [ fhir:v "Intermittent" ]
] )
] [
fhir:linkId [ fhir:v "diagnosis_degree_p" ] ;
fhir:text [ fhir:v "Pitch" ] ;
fhir:type [ fhir:v "string" ]
] [
fhir:linkId [ fhir:v "diagnosis_degree_p_nature" ] ;
fhir:text [ fhir:v "Pitch\n(Indicate the nature of the abnormality):" ] ;
fhir:type [ fhir:v "string" ] ;
fhir:enableWhen ( [
fhir:question [ fhir:v "diagnosis_degree_p" ] ;
fhir:operator [ fhir:v ">" ] ;
fhir:answer [ fhir:v "0" ]
] )
] [
fhir:linkId [ fhir:v "diagnosis_degree_p_2" ] ;
fhir:text [ fhir:v "Pitch" ] ;
fhir:type [ fhir:v "choice" ] ;
fhir:answerOption ( [
fhir:value [ fhir:v "Consistent" ]
] [
fhir:value [ fhir:v "Intermittent" ]
] )
] [
fhir:linkId [ fhir:v "diagnosis_degree_l" ] ;
fhir:text [ fhir:v "Loudness" ] ;
fhir:type [ fhir:v "string" ]
] [
fhir:linkId [ fhir:v "diagnosis_degree_l_nature" ] ;
fhir:text [ fhir:v "Loudness\n(Indicate the nature of the abnormality):" ] ;
fhir:type [ fhir:v "string" ] ;
fhir:enableWhen ( [
fhir:question [ fhir:v "diagnosis_degree_l" ] ;
fhir:operator [ fhir:v ">" ] ;
fhir:answer [ fhir:v "0" ]
] )
] [
fhir:linkId [ fhir:v "diagnosis_degree_l_2" ] ;
fhir:text [ fhir:v "Loudness" ] ;
fhir:type [ fhir:v "choice" ] ;
fhir:answerOption ( [
fhir:value [ fhir:v "Consistent" ]
] [
fhir:value [ fhir:v "Intermittent" ]
] )
] [
fhir:linkId [ fhir:v "diagnosis_degree_comments" ] ;
fhir:text [ fhir:v "Comments about resonance" ] ;
fhir:type [ fhir:v "choice" ] ;
fhir:answerOption ( [
fhir:value [ fhir:v "Normal" ]
] [
fhir:value [ fhir:v "Other" ]
] )
] [
fhir:linkId [ fhir:v "diagnosis_degree_comments_other" ] ;
fhir:text [ fhir:v "Please specify" ] ;
fhir:type [ fhir:v "string" ] ;
fhir:enableWhen ( [
fhir:question [ fhir:v "diagnosis_degree_comments" ] ;
fhir:operator [ fhir:v "=" ] ;
fhir:answer [ fhir:v "2" ]
] )
] [
fhir:linkId [ fhir:v "diagnosis_degree_comments_other_2" ] ;
fhir:text [ fhir:v "Additional Features\n(for example, diplophonia, fry, falsetto, asthenia, aphonia, pitch instability, tremor, wet/gurgly, or other relevant terms):" ] ;
fhir:type [ fhir:v "string" ]
] [
fhir:linkId [ fhir:v "diagnosis_vfp_treatment" ] ;
fhir:text [ fhir:v "5. Treatment obtained: Has the patient undergone any treatment for his condition?" ] ;
fhir:type [ fhir:v "choice" ] ;
fhir:answerOption ( [
fhir:value [ fhir:v "Surgery" ]
] [
fhir:value [ fhir:v "Speech therapy" ]
] [
fhir:value [ fhir:v "No treatment" ]
] )
] [
fhir:linkId [ fhir:v "diagnosis_vfp_treatment_surgery" ] ;
fhir:text [ fhir:v "Surgery - Subcategory" ] ;
fhir:type [ fhir:v "choice" ] ;
fhir:enableWhen ( [
fhir:question [ fhir:v "diagnosis_vfp_treatment" ] ;
fhir:operator [ fhir:v "=" ] ;
fhir:answer [ fhir:v "1" ]
] ) ;
fhir:answerOption ( [
fhir:value [ fhir:v "Thyroplasty" ]
] [
fhir:value [ fhir:v "Vocal fold injection augmentation" ]
] )
] [
fhir:linkId [ fhir:v "diagnosis_vfp_treatment_surgery_thyroplasty" ] ;
fhir:text [ fhir:v "Thyroplasty - Subcategory" ] ;
fhir:type [ fhir:v "choice" ] ;
fhir:enableWhen ( [
fhir:question [ fhir:v "diagnosis_vfp_treatment_surgery" ] ;
fhir:operator [ fhir:v "=" ] ;
fhir:answer [ fhir:v "1" ]
] ) ;
fhir:answerOption ( [
fhir:value [ fhir:v "Goretex" ]
] [
fhir:value [ fhir:v "Silastic" ]
] )
] [
fhir:linkId [ fhir:v "diagnosis_vfp_treatment_surgery_vfia" ] ;
fhir:text [ fhir:v "Vocal fold injection augmentation - Subcategory" ] ;
fhir:type [ fhir:v "choice" ] ;
fhir:enableWhen ( [
fhir:question [ fhir:v "diagnosis_vfp_treatment_surgery" ] ;
fhir:operator [ fhir:v "=" ] ;
fhir:answer [ fhir:v "2" ]
] ) ;
fhir:answerOption ( [
fhir:value [ fhir:v "Caha" ]
] [
fhir:value [ fhir:v "Gel" ]
] [
fhir:value [ fhir:v "Hyaluronic Acid augmentation" ]
] [
fhir:value [ fhir:v "Fat injection" ]
] )
] ) . #
# -------------------------------------------------------------------------------------
| LinkID | Text | Cardinality | Type | Description & Constraints |
|---|---|---|---|---|
![\".\"](\"tbl_spacer.png\") ![\".\"](\"icon_q_root.gif\" "\\"QuestionnaireRoot\\"") | Questionnaire | https://kind-lab.github.io/vbai-fhir/Questionnaire-dvoicevocalfoldparalysisschema#2.2.0 | ||
![\".\"](\"tbl_vjoin.png\") ![\".\"](\"icon-q-coding.png\" "\\"Coding\\"") diagnosis_vfp_gsd | 1. Gold Standard Diagnosis: Does the patient have VFP confirmed by laryngoscopy/stroboscopy? | 0..1 | choice | Options: 3 options |
| diagnosis_vfp_ds | 2. Disease Subtype: Which side is the paralysis? | 0..1 | choice | Options: 2 options |
| diagnosis_vfp_etiology | 3. Etiology: What is the etiology? | 0..1 | choice | Options: 4 options |
| diagnosis_vfp_iatrogenic | Iatrogenic (surgery/intubation) subcategory | 0..1 | choice | Enable When: diagnosis_vfp_etiology = 2 Options: 6 options |
| diagnosis_vfp_tumor | Tumor invading RLN - Subcategory | 0..1 | choice | Enable When: diagnosis_vfp_etiology = 3 Options: 3 options |
| diagnosis_vfp_dse | 4. Disease Severity: Degree of Glottic Gap | 0..1 | choice | Options: 3 options |
![\".\"](\"icon-q-string.png\" "\\"String\\"") diagnosis_vfp_degree_text | Degree of dysphonia\n\nCAPE-V scale | 0..1 | string | |
| diagnosis_vfp_degree_legend | Legend:C- Sonsistent I = IntermittentMI = Mildly DeviantMO = Moderately DeviantSE = Severely Deviant | 0..1 | string | |
| diagnosis_degree_os | Overall Severity | 0..1 | string | |
| diagnosis_degree_os_2 | Overall Severity | 0..1 | choice | Options: 2 options |
| diagnosis_degree_r | Roughness | 0..1 | string | |
| diagnosis_degree_r_2 | Roughness | 0..1 | choice | Options: 2 options |
| diagnosis_degree_b | Breathiness | 0..1 | string | |
| diagnosis_degree_b_2 | Breathiness | 0..1 | choice | Options: 2 options |
| diagnosis_degree_s | Strain | 0..1 | string | |
| diagnosis_degree_s_2 | Strain | 0..1 | choice | Options: 2 options |
| diagnosis_degree_p | Pitch | 0..1 | string | |
| diagnosis_degree_p_nature | Pitch\n(Indicate the nature of the abnormality): | 0..1 | string | Enable When: diagnosis_degree_p > 0 |
| diagnosis_degree_p_2 | Pitch | 0..1 | choice | Options: 2 options |
| diagnosis_degree_l | Loudness | 0..1 | string | |
| diagnosis_degree_l_nature | Loudness\n(Indicate the nature of the abnormality): | 0..1 | string | Enable When: diagnosis_degree_l > 0 |
| diagnosis_degree_l_2 | Loudness | 0..1 | choice | Options: 2 options |
| diagnosis_degree_comments | Comments about resonance | 0..1 | choice | Options: 2 options |
| diagnosis_degree_comments_other | Please specify | 0..1 | string | Enable When: diagnosis_degree_comments = 2 |
| diagnosis_degree_comments_other_2 | Additional Features\n(for example, diplophonia, fry, falsetto, asthenia, aphonia, pitch instability, tremor, wet/gurgly, or other relevant terms): | 0..1 | string | |
| diagnosis_vfp_treatment | 5. Treatment obtained: Has the patient undergone any treatment for his condition? | 0..1 | choice | Options: 3 options |
| diagnosis_vfp_treatment_surgery | Surgery - Subcategory | 0..1 | choice | Enable When: diagnosis_vfp_treatment = 1 Options: 2 options |
| diagnosis_vfp_treatment_surgery_thyroplasty | Thyroplasty - Subcategory | 0..1 | choice | Enable When: diagnosis_vfp_treatment_surgery = 1 Options: 2 options |
![\".\"](\"tbl_vjoin_end.png\") diagnosis_vfp_treatment_surgery_vfia | Vocal fold injection augmentation - Subcategory | 0..1 | choice | Enable When: diagnosis_vfp_treatment_surgery = 2 Options: 4 options |
Options Sets
Answer options for diagnosis_vfp_gsd
- No
- Yes
- Not certain
Answer options for diagnosis_vfp_ds
- Left
- Right
Answer options for diagnosis_vfp_etiology
- Idiopathic
- Iatrogenic (surgery/intubation)
- Tumor invading RLN
- Radiation
Answer options for diagnosis_vfp_iatrogenic
- Thyroidectomy
- ACDF
- Lung surgery
- Heart Surgery
- Intubation
- Brain Surgery
Answer options for diagnosis_vfp_tumor
- Brain
- Chest
- Neck
Answer options for diagnosis_vfp_dse
- Small
- Moderate
- Large
Answer options for diagnosis_degree_os_2
- Consistent
- Intermittent
Answer options for diagnosis_degree_r_2
- Consistent
- Intermittent
Answer options for diagnosis_degree_b_2
- Consistent
- Intermittent
Answer options for diagnosis_degree_s_2
- Consistent
- Intermittent
Answer options for diagnosis_degree_p_2
- Consistent
- Intermittent
Answer options for diagnosis_degree_l_2
- Consistent
- Intermittent
Answer options for diagnosis_degree_comments
- Normal
- Other
Answer options for diagnosis_vfp_treatment
- Surgery
- Speech therapy
- No treatment
Answer options for diagnosis_vfp_treatment_surgery
- Thyroplasty
- Vocal fold injection augmentation
Answer options for diagnosis_vfp_treatment_surgery_thyroplasty
- Goretex
- Silastic
Answer options for diagnosis_vfp_treatment_surgery_vfia
- Caha
- Gel
- Hyaluronic Acid augmentation
- Fat injection